Such a good day! AJ had his sedated echo, EKG, and chest x-ray this morning. His heart is functioning like it should. There still is some fluid around his heart, which will have to be monitored. His pulmonary arteries also have some narrowing, which we knew about. Those will also have to be closely monitored. In addition, the echo showed that there is fluid around the patch of his VSD. That is normal. Hopefully, tissue will grow around the patch and close the holes. Other than that, he looks great!

So with all that great news-we are ready for discharge!! The plan is to be discharged sometime tomorrow. I'm hoping we can get a feed in and then hit the road! I also pray that the weather will not be too bad and the roads clear.

We will follow-up with his pediatrician this week and cardiologist within a week or two. And then by next week he should be able to resume OT and PT! We can make plans for him to have another swallow study down the road, after he is off Enfaport.

Due to a conduit being placed this surgery, he will have to have lifelong surgeries as he grows. Right now they hope that he can make it to 5 years old before his next surgery. But that does not mean that it will not be sooner. It depends on AJ and we all know that he has his own agenda! I pray that he will be able to start eating orally again and will catch up on his milestones. We're just taking it one day at a time and enjoying every last minute that we have together.

Thank you all so much for sharing this journey with us. Your words of encouragement, prayers, monetary gifts, and support have truly helped us get this far. We are so grateful to have so many wonderful people in our lives.

There are many families that have left the Ronald McDonald House without their child. I cannot fathom how that would feel. We are very blessed and fortunate to be able to take AJ home. Without a doubt, he was put here for a reason. His angels continue to stay close and watch over him. :)